World Down Syndrome Day at Telethon Kids

Rock your socks with Down Syndrome WA and Telethon Kids Institute to mark World Down Syndrome Day!

Join our panel of experts to hear about the latest research and developments to improve the lives of people living with Down Syndrome.

Learn more about the link between Down Syndrome and leukemia, and the latest advances in day-to-day medical care.

Join the discussion about how community participation is improving the lives of people living with Down Syndrome.

This FREE webinar is open to everyone, and our experts will answer YOUR questions at the end of the session.

For World Down Syndrome Day 2023, a global network of people living with Down Syndrome and their loved ones are calling for people and organisations to be “with us, not for us.”

Learn more here:


Our speakers

Nia Parker

Nia Parker

Chair, Down Syndrome WA

Nia is a mother of a young adult with a diagnosis of Down Syndrome. Nia’s lived experience gives her a good understanding of accessing services and support, particularly in rural and regional areas of our state where Nia has worked as a physiotherapist. Her areas of interest include employment, social opportunities, and independent living options.

Dr Jenny Downs

Associate Professor Jenny Downs

Head of Child Disability at Telethon Kids Institute

Jenny Downs is Head of the Child Disability team at Telethon Kids Institute. Her current program include research on rare developmental conditions such as Rett syndrome and more common developmental conditions such as Down syndrome. Jenny has led the development of outcome measures of functional abilities and quality of life. She has run clinical trials investigating early developmental interventions and how to increase physical activity in disability. Her research is guided by her vision that all children with disability will live with better health and quality of life, making sure that interventions to support their needs are evaluated with rigour and consistency.

Sebastien Malinge

Dr Sébastien Malinge

Lab head in Leukaemia research at Telethon Kids Institute

Dr Sébastien Malinge is a molecular biologist researcher and lab head at Telethon Kids Institute – Cancer Centre. He is specialised in the field of childhood leukaemia, with strong scientific background in understanding the mechanisms of leukaemia predisposition and development in children with Down syndrome. Sébastien also sits on the DSWA board.

Dr Colin Derrick

Dr Colin Derrick

Consultant Paediatrician

Dr Colin Derrick is a Consultant Pediatrician who works in the child development arena, in the rare diseases clinic and in acute Paediatrics at PCH. He established and runs a clinic for Neurofibromatosis at PCH as well as being involved in research into self harm and ADHD as well as Neurofibromatosis and ADHD. Colin trained in South Africa and the UK and currently work at PCH, Child development services and Rockingham hospital.

  •  March 21, 2023
     7:00 pm - 7:45 pm
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